Whenever I sit down to write an essay, research paper, review, I begin with the middle passage and usually even get through a rough finish before I compose an introduction.The big picture just has a better flow when I scramble it up into pieces and then go back and smooth it all over. Maybe that reveals a lot about my personality, but I can't be the only one!
Not unlike what I have just described, I wanted to fill you in on the turning point in the lives of my family, not start from the beginning, you know you want to hear about my happy childhood and wonderful country upbringing, but one day, I will get there! Haha...But I feel that without this background information, I as a person, my position on certain topics, and my NEED to help others cannot be understood, so I decided to start in the middle, like always. (Well, at least it makes logical sense this time!)
What I am focusing on here today is more the "middle" of my life, what will, I hope, be the biggest game changer and life altering periods for me and my family. We all have these moments in our lives, where we wish we know now what we didn't know then, and obviously we are all still here, so we made it through with God's grace, but these moments changed who we are and made little things seem HUGE and HUGE things seem little. Things that break you and you know you just can't take another step, but you do, and if that step is down the right path, all turns out well.
I first wrote these passages when my youngest child, Kinlee was four, who is now 7, and more people wanted her whole story to be told, so I created a Facebook group and invited those who had been asking to follow along. I wrote these passages in four volumes, and I will only post the first passage here for right now, to save your eyes from aching! Check my blog tomorrow for the second passage. I beg you to keep in mind, though, to save you from the emotional roller coaster that this story will take you on, that THIS is Kinlee, the miracle child that is the subject of such suffering, but I promise, nothing but AMAZING guardian angels, happiness and victory surround this child of God!
Part I: Discovery
Caylee was born April 20, 2007 and had to stay
in the hospital for 5 days after her birth because her blood sugar was too low.
I was discharged April 22nd and Caylee had to stay until April 25th. in my
mind, leaving my first born those 3 nights was the WORST thing that could EVER
happen! We were SO HAPPY to finally bring her home when her blood sugar
stabilized.
Kinlee was born Oct. 8, 2008, and came home from the hospital 36 hrs after she was born w a better APGAR score than Caylee. She was an amazingly calm and sweet baby for 8 weeks, and then she began to get fussier and fussier until she wouldn't let us put her down. I began taking her to the doc and they said "GERD", colic, and other normal things were to blame. "Common things are commom, Ms. Thomas" is what I heard over and over again. Christmas 2008 was not fun with an 18 month old and a newborn we couldn't put down (actually, I remember being in a sleep-deprived haze from breastfeeding and sleeping only while holding an infant)! But Kinlee was still consolable as long as she was being held, preferably by Lee or I. "Consolable" seemed to be just as much of a buzz word or tag line to the docs as "Common things are common". During the week between Christmas and New Years, Kinlee's eyes began to display a symptom referred to as "sunset syndrome" where her irises would roll around and dip or rise out of visibility, at first it was subtle, then not so subtle. I went back to the doc on December 30th, 2008 and insisted something was wrong, the doc sent the CNA back twice to measure Kinlee's head, and then came in to tell me that Kinlee needed a CT scan. I asked her when I should schedule it; she replied "they are waiting for you now". That is when that lightning streak of fear ran through my body. I put 10 week old Kinlee in the car and went to start it and my car didn't crank. What a perfect time for a dead battery! But Thank You, Lord, Lee and Caylee came and picked us up and we all went together to MUSC Children's ER.
Time REALLY gets skewed for me after our arrival at MUSC. She had a CT scan, and our families had time to arrive, and after what seemed like forever, we were told of its findings. That our 8 lb, 10 week old baby had a mass in her brain. I asked "how big" and the docs answered "big". That was my first lesson in not asking questions when you did not desire the answer . So we were admitted to MUSC Children's Hospital Pediatric Intensive Care Unit. When scpriture says "to God a thousand years is a day and a day is a thousand years", I can relate!! Even now, five years later, December 30th, 2008 seemed like 10 days linked together into one nightmare.
Kinlee was born Oct. 8, 2008, and came home from the hospital 36 hrs after she was born w a better APGAR score than Caylee. She was an amazingly calm and sweet baby for 8 weeks, and then she began to get fussier and fussier until she wouldn't let us put her down. I began taking her to the doc and they said "GERD", colic, and other normal things were to blame. "Common things are commom, Ms. Thomas" is what I heard over and over again. Christmas 2008 was not fun with an 18 month old and a newborn we couldn't put down (actually, I remember being in a sleep-deprived haze from breastfeeding and sleeping only while holding an infant)! But Kinlee was still consolable as long as she was being held, preferably by Lee or I. "Consolable" seemed to be just as much of a buzz word or tag line to the docs as "Common things are common". During the week between Christmas and New Years, Kinlee's eyes began to display a symptom referred to as "sunset syndrome" where her irises would roll around and dip or rise out of visibility, at first it was subtle, then not so subtle. I went back to the doc on December 30th, 2008 and insisted something was wrong, the doc sent the CNA back twice to measure Kinlee's head, and then came in to tell me that Kinlee needed a CT scan. I asked her when I should schedule it; she replied "they are waiting for you now". That is when that lightning streak of fear ran through my body. I put 10 week old Kinlee in the car and went to start it and my car didn't crank. What a perfect time for a dead battery! But Thank You, Lord, Lee and Caylee came and picked us up and we all went together to MUSC Children's ER.
Time REALLY gets skewed for me after our arrival at MUSC. She had a CT scan, and our families had time to arrive, and after what seemed like forever, we were told of its findings. That our 8 lb, 10 week old baby had a mass in her brain. I asked "how big" and the docs answered "big". That was my first lesson in not asking questions when you did not desire the answer . So we were admitted to MUSC Children's Hospital Pediatric Intensive Care Unit. When scpriture says "to God a thousand years is a day and a day is a thousand years", I can relate!! Even now, five years later, December 30th, 2008 seemed like 10 days linked together into one nightmare.
*Remember this is NOWHERE NEAR the end, so keep checking back!!**
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Love your story. Can't wait to read more. Nice job!
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